Resources for School-Age Years
There’s a lot going on, between navigating school and friends, keeping everyone healthy, and finding fun activities. Check out the resources below, all given a thumbs-up from DSAMN families.
DSAMn Community Parent Groups
DSAMn Community Parent Groups are available in 17 communities across Minnesota as well as specialty support groups for new parents, grandparents, siblings, Somali families and Latinx families.
DSAMn’s Online/Facebook Discussion Groups for Parents of School-Age Children
Minnesota Moms: Ages 5–12
Down Syndrome & Autism – Dual Diagnosis
Family Connectors help parents navigate the complexities that come with raising a child with Down syndrome, including guidance regarding health care, education, county services, and other community resources.
Webinars and conferences
Webinars and conferences give parents and families access to trusted experts and the latest, most up-to-date information.
In addition, we’ve gathered helpful resources below, plus you can reach out to a Family Connector with specific questions or needs.
Every child with Down syndrome qualifies for an Individualized Education Plan and to receive individualized support services from your local school district. In addition, you may qualify for a Follow-Along Program through the Minnesota Department of Health. We are here to make a referral to get you started.
More Education Resources:
- Minnesota Department of Education: Special Education Services Information
- DSAMn Back To School Proactive Communication Resources (link)
- Pacer Center: A Guide to the Individualized Education Program (IEP) to Minnesota Parent
- Pacer Center: Introduction to the IEP, Assistance, and Advocacy
- Southeastern Minnesota Council for Independent Living: IEP Advocacy
- MN Disability Law Center
A lot of information about your child’s health is thrown at you during your first few weeks and months. It can be overwhelming. Minnesota has a number of wonderful resources available, and we can help you sort through them. Our new parent program manager and family connectors can walk you through each of these resources to find what’s right for your family.
Additional Health Care Resources:
- Childrens MN Down Syndrome Clinic
- Gillette Hospital Complex Care and Transition Services
- DSC2U: A personalized care plan for individuals with Down syndrome*
- Medical Care Information & Guidelines for Children with Down Syndrome: 5 Years to 13 Years
- Medical Assistance: Resources from the Minnesota Department of Human Resources
- Minnesota Health Care Programs: Program Information and Eligibility Rules
*DSAMn offers a subsidy to families to access DSC2U, contact us to learn more.
- Arc of Minnesota: Promoting and Protecting Rights of All
- Disability Hub MN: Helping You Plan Your Best Life, Your Way
- Global Down Syndrome Foundation | Research, Care, Education, Advocacy
- Minnesota Governor’s Council on Developmental Disabilities: Info, Education and Training
- Minnesota State Council on Disability: Advisors to Legislators
- National Down Syndrome Congress: National Info and Support Resource
- National Down Syndrome Society: Human Rights Organization